Isolation, Day 6: Is everyone still wearing pants?
It feels very strange to be home and know I’m going to be here for awhile. It’s another example of what my grandmother used to tell me: “Be careful what you wish for.”
How many times did I sigh and wish I could just stay home and chill for a few days? It’s beginning to look like it could be a few months. My husband and I decided we probably could enjoy a beer with friends online via Skype or Zoom, so we’re looking into that today.
Meanwhile, I’m going to order some seeds and plants online for the garden. I have lots of work I could do out there, and if I get that all taken care of, I could order some stuff from Home Depot, get onto YouTube and learn how to do some home repair and remodeling.
What makes this hard is that I have little to distract me from this time of year, of reliving the death of one son and fearing the death of my only surviving son.
What makes this hard is that I have worked for a dozen years to try and convince legislators and policymakers how important it is to get access to health care for everyone, only to be called a commie, a radical and countless other names. I tried to speak to them, only to be arrested time and again rather than have anyone hear me.
And here we are, facing a genuine health care crisis with one of the most broken systems on the planet. We could lose 2.2 million Americans — twice as many as would die if we had done the right thing and fixed this.
Twelve years ago today, all hope of any serious time with my son was dashed, as we learned the chemo wasn’t working and there were no more options.
Mike had his third chemo appointment this morning. His doctor had told him at the previous appointment that he needed to gain two pounds before today. I had gone into the Duke Chapel to find a quiet corner and pray for those two pounds. It seemed like so little to ask. Two pounds. Two fucking pounds.
I slept on the couch at his apartment the night before so we could get an early start, and when we settled in with a cup of coffee, he sat in the easy chair across the room and sighed.
“I’m ready for this to be over,” he said.
Maybe he was, but I wasn’t. I would never be ready to lose him.
We went to Duke and he stepped on the scale.
He had lost a pound. I still remember the look on his face as he turned to me and said, “I tried. I really tried!”
This was it.
His doctor’s eyes began to tear up.
“I want you to know you’re a good person and you don’t deserve what’s happening to you,” he said. I wished his original doctor in Savannah had felt that way — it would have saved his life.
There would be no more chemo. There would be nothing but Hospice.
The physician assistant advised him to come home with me.
“Go today,” she said. “Let people take care of you now.”
As we headed back to the car, me pushing Mike in a wheelchair because he was too weak to walk, he turned to me and asked, “So, how much time do you think I have left, two weeks, maybe?”
“Oh, I hope we have more than that,” I said.
We did not.
His heart would stop, and mine would break, two weeks later, almost to the moment.
Two words: Yoga pants. I’m surprised it took me five days to see this. I don’t have to wear uncomfortable clothes, although I’m not so far gone I won’t put on a bra.
I’ve been saying for months I need a week with no obligations. So far, I can’t complain. If I’m here for a month, I might actually get the inspiration to clean out the closets and the garage.
I always thought I was an extrovert, but I think I have become more of an introvert. I’m sitting here in my office, by myself, sipping coffee and thinking about what I’m going to need for the garden this year. Compost for sure. I need to order a load.
Trying not to think about what’s left of our life savings and how we’ll cope if the stock market doesn’t come back. The garden is part of that plan.
And of course, my mind goes back 12 years, to a day when I still had hope my son would be with me a little while longer.
On this day, I was driving to Cary, a four-hour trip, so I could take Mike to his third chemo infusion the next day. I had arranged for an interview in Raleigh for a story on the mental health system. I didn’t dare take a day off because my boss was charging me with vacation days, and I only had a few left. I couldn’t afford unpaid leave, so I was scheduling interviews at state agencies when I was in Raleigh and writing stories in the evening. I didn’t have the luxury of just concentrating on caring for my son.
I think about this now as many friends face weeks or months without a paycheck as they try to avoid getting sick without access to health care.
Norway has asked its college students to come home from the US because of our Medieval health care system.
Until now, the death rate from lack of access to health care has been one American every 8 minutes. It was one every 12 minutes when my son died, but a new Yale University found it to be higher now, and it’s about to really spike as we turn people away from hospitals that are unprepared for the influx of desperately ill people.
For the last 12 years I have worked relentlessly for a system that benefits people over profits, and I have been called communist or just plain crazy for suggesting that even unemployed people deserve health care. I have been driven from a job I loved by right-wing Tea Party fools, and arrested for trying to speak to fascist lawmakers who don’t care that people without access to care are dying.
We’ve made progress in public opinion over these last dozen years, but not in action. The Affordable Care Act left the system in the hands of the profit-mongers, who subverted it to meet their own needs. Nearly three-quarters of employer-sponsored plans are high-deductible ($1,500 or more) at a time when 40 percent of Americans say they can’t afford a surprise bill of $400.
Do you have any idea how much worse this pandemic will be here than it has to? Do you think about how many people will die who should have survived?
It’s about to get real, folks, partly because our public health systems are so broken after decades of pillaging by Republicans and the refusal of Democratic neo-liberals to reassemble it when they had the chance.
A lot of people are going to lose loved ones in this pandemic, and a lot of them will be people who would have been able to survive if we’d only had the leadership we needed to get our health care systems in order. This virus will not spare the wealthy, although they can afford to stay out of work a lot longer than poor folks. Still, they seem to be the ones least willing to isolate.
I’m not talking about people who were on vacation or visiting family when this started to get real — I’m talking about people like the owners of the Biltmore Estate who want to squeeze every dime they can before they’re forced to close (yes, the tourist attraction is partially open still), hoping to attract tourists when they should be closing down entirely. I’m talking about restaurants advertising how clean they are to try and attract diners.
People are not concerned enough, and plenty of people will die who shouldn’t because there is no leadership coming from the White House. Again, our government is falling down on the job and the upshot will be tragic.
I know how this kind of tragedy feels because on this day in 2008, I had just 15 days left with my precious son.
I have something important to say, and I need to be heard.
I don’t agree that Biden is the answer to any of our problems and I don’t want to be forced to vote for him.
I also don’t want to have you calling me names and telling me to fuck off because I don’t agree with you.
First of all, he is not yet the nominee, so trying to force me to pledge fealty to the failing candidate of a party that is fast becoming irrelevant before he’s the nominee is just cruel.
Let me tell you why. Twelve years ago today, I was trying to prepare for a life without my beloved son. I was facing every parent’s worst nightmare and I was terrified. And I am forced to re-live those final six weeks of his life every damn year.
Here we are, a dozen years after I promised my son I would fight like hell to prevent other people from dying the way he did and you’re calling me every name in the book for refusing to swear to vote for a man who won’t do a damn thing to fix a health care system that’s even more broken than it was 12 years ago.
When my son died, an American was dying every 12 minutes from lack of access to health care; today it’s once every eight minutes.
The Affordable Care Act isn’t working and Biden has said he won’t move toward a real fix for it. He has said things will stay the same.
So, here I am, grieving for my son with a pain that has not gotten any better since he breathed his last, and you’re screaming that I have to get in bed with the enemy.
So my choice is a man who doesn’t care that someone dies once every eight minutes or one who’s pretty close to gleeful about it.
Stop telling me to shut up and vote for someone who thinks things are fine, especially since the nominating process isn’t half over yet.
Stop telling me I have to vote for a man whose actions toward women are disrespectful of their personal space and dismissive of their concerns about dominion over their own bodies.
Stop demanding I vote for a pro-war, pro-Wall Street candidate when it violates everything I stand for.
Stop disrespecting who I am and what I stand for.
I have not said I won’t vote for this demented old creep; I have said I don’t want to.
I understand about the Supreme Court and all the rest.
But we don’t have time to waste on climate action and he will waste time. I have grandchildren and great-grandchildren and I want them to inherit a planet they can inhabit.
We can’t keep putting off giving low-wage workers a chance at a decent life with a living wage, paid sick leave and access to quality health care.
Your insistence on everyone getting in your boat assumes that we all have ladders to climb, and too many of us don’t. As the saying goes, you can’t pull yourself up by your bootstraps if you don’t have boots.
Your intransigence proves your level of privilege. You can wait four years for things to get better. Too many of us can’t, but that doesn’t matter to you.
It isn’t enough to vote for Trump-lite. The status quo is not good enough, and if it is for you, then you need to open your eyes and check your privilege. You need to see how too many around you are suffering. Open your ears and listen to the stories of people who can’t provide for themselves even though they’re working two and three jobs.
Joe Biden is NOT good enough.
If forced to vote for him, I will, but he will not win. It will be a replay of 2016, and we will get four more years of the current mess. And then you’ll blame the people who just can’t bring themselves to vote for more of the same.
I refuse to get angry with people who can’t face a Biden presidency because the thought of it leaves me utterly without hope.
So before you yell at me to shut the fuck up, maybe you should try to understand that I don’t want your child to die the way mine did. Maybe you should look and listen to the 140 million Americans who live in or near poverty, who have no hope of a better life if they have to live — and all too often, die — without the changes we need.
We talk a lot about getting in line, but nowhere near enough about where that line is headed.
Yes, I am pissed off. You bet I am.
This is my country, too, and I’m just trying to make it a better, more moral place for the people I care about. And I care about everyone.
Twelve years ago today, as I was driving into work, I got the phone call that would change my life.
I can still hear his voice. “Mom, the cancer’s back. There’s no cure. The most I can hope for is a year.”
There wouldn’t be a year. In fact, six weeks later, to the day, he would breathe his last.
I can’t describe my feelings that morning — the same feeling I have today as I re-live the trauma of learning there would be no hope for my son to realize his dream of going to law school to become a legal aid attorney because “poor people deserve a good lawyer, and I plan to be the best.”
I couldn’t cry because I had to get into work, and I knew once I started allowing myself to feel what was happening, I would lose control. My husband would be in the office a half hour after I got there, so I would say nothing to anyone until I could talk to him. If I spoke to anyone about it, I knew I would fall apart.
I sat down at my desk and shuffled papers, looked at my schedule, checked my phone for messages, checked my e-mail. None of it registered; I had to just go through the motions until my husband got there.
But when he did, and I walked over to his desk to tell him, I fell apart. It was all I could do to stay on my feet. I couldn’t breathe except to take in air with each wracking sob.
I don’t remember much about the next few minutes except that my colleagues stepped in to hold me up while my husband went to tell the managing editor that we were leaving to go to Cary and be with Mike. The editor never came out of his office to speak to me.
This day begins the most terrible six weeks of my life, re-lived now for the 12th time. Each year, the pain of losing him comes back, as fresh and new as it was 12 years ago.
The most painful part of it all is that it never should have happened. If he’d had access to an annual colonoscopy, he would still be here, probably a legal aid attorney working with people in Durham. I imagine him in the fight to end cash bail, working to get people who are awaiting trial released from jail so they wouldn’t lost their jobs, housing or children.
If we had a health care system like those in the rest of the industrialized world, he would still be here, still be a jackass who loved nothing better than a good practical joke, still cooking gourmet dinners for all of us, still complaining about bad drivers and traffic jams … still Mike.
But we have the most backward system anywhere in the so-called developed world, a system that killed 45,000 or more Americans each year in 2008 — a half million since it robbed me of my son.
The Affordable Care Act stemmed the tide a little for a few years, but we made the mistake of leaving insurance companies in charge, and they have perverted the system to their advantage with $6,000 deductibles. According to ehealthinsurance.com, in 2018, the average deductible was $4,328 for an individual and $8,352 for families.
Nearly three-quarters of employer-sponsored plans have deductibles of $1,500 or more, and the average family spends about $20,000 per year on health care costs. With more than 40 percent of Americans saying they can’t pay a $400 surprise bill without borrowing money, it’s hard to imagine how any but the wealthiest Americans can say they love their insurance plan.
That’s the “progress” we’ve made toward a more just and equitable health care system in the 12 years since I promised my son I would fight for access to health care for every human being. In fact, a new study from Yale University places the annual death toll at 65,000-plus, which means an American dies once every eight minutes.
I remember pieces of that day so clearly. I remember the shock of seeing how much weight he had lost in the few weeks since I had seen him last. I had trouble catching my breath.
I remember my daughter-in-law coming over to Mike’s place (they had been forced to split so he could get Medicaid here in North Carolina) and I remember his best friend and roommate, James, telling me of his fear of coming home from work and finding Mike dead.
After we had spent a couple hours with Mike, we checked into our hotel. My husband took a nap, and unable to even think about sleeping, I walked over to the electronics store across the street from the hotel. I was looking at photo printers, wondering how to connect them to my computer. As always, I thought Mike would be able to answer any questions I had about it, and then I realized he would be gone soon, and I almost fell to the floor. I don’t remember the walk back to the room, although I do remember how cold it was, and that I didn’t have a warm jacket with me.
I went to Target to get an inexpensive jacket — a red Converse zip-front hoodie — and I saw an exasperated mother with a fussy toddler. I wanted to stop and tell her how precious that child was, even though he didn’t seem so at the moment. I wanted to tell her to hold him close and love him because he could be taken from her by a system that preys on people rather than cures them.
I kept walking instead because I didn’t want to look like a crazy woman.
I’ve been working on this a dozen years and we are no closer to health care justice than we were when my son’s heart stopped.
I am the family member of just one of more than a half million corpses from this carnage, and every one of us has to live with this indescribable pain. I wouldn’t wish it on anyone — not even on the policymakers who allow it to continue, unabated, or to the corrupt insurance company executives who bribe policymakers to leave them in charge of such an immoral system.
I want desperately to see change. I want to see an end to these unnecessary deaths that rip families apart day after day after day — one every eight minutes.
So, stop telling me we need to get there gradually — it’s been too gradual already, and for every eight minutes we delay, another body is added to the count.
You want to call yourself “pro-life” or even moral? Stop supporting politicians who say we can’t afford to care for everybody. We can afford it, and we must.
It is 12 years past time for my precious son, and my pain is as terrible today as it was on this day 12 years ago.
I will never get over it.
I will never move on, not until every human being has full access to quality care.
The first thing I noticed about Mayor Pete Buttigieg is that he’s not much taller than I am and that I probably outweigh him, unless his bones are made of lead. I could whup him in a fair fight — if I weren’t committed to nonviolence.
He came into Greenleaf Christian Church on Sunday and took his seat in the pew cross the aisle from me. He struck me as humble. He smiled at the people around him and waited for the service to begin.
He looked a little overwhelmed as his Episcopalian sensibilities were rocked by the jubilation of worship at Greenleaf, a church led by a black pastor but with a diverse membership of people of all races, from all kinds of backgrounds, gay and straight, able-bodied and with disabilities, rich and poor. But as the singing continued, he smiled and eventually got to his feet and clapped and rocked with the rest of us.
Mayor Pete had been invited to speak and answer questions at the Poor People’s Campaign Moral Congress in June, but had been unable to attend. When Rev. Dr. William Barber II, co-leader of the Poor People’s Campaign, invited him to answer the same questions as the other candidates fielded, Mayor Pete, accepted.
I never got the sense that this was a dog and pony show, produced to make us believe Pete Buttigieg is the answer to all our prayers. He sat through a two-hour service, sang with us, listened to the sermon and seemed to enjoy it.
I never got the sense that Rev. Barber wanted to promote him or tear him down. The Poor People’s Campaign is political in that it works to change the public policies that impoverish people, but it does not endorse candidates.
Rev. Barber has no problem with Mayor Pete’s (or anyone else’s) sexuality. Instead, he explained why sexual preferences and/or identity aren’t important to him.
“I don’t ask an airline pilot if he’s gay,” Rev. Barber told Buttigieg. “I ask whether he can fly the plane. I don’t ask a surgeon whether he’s gay, I ask whether he can do the operation.”
I don’t agree with Mayor Pete on some of the issues, but he appears sincere in his desire to serve and to try and tackle some of our biggest problems.
My problem with his policies is that he’s advocating incrementalism in the minimum wage and in health care, and I’m done waiting.
People who make $7.25 an hour — less than half of what it actually takes to live in any county in the nation — deserve to have relief now, not in four years, because by the time a $15 an hour wage is phased in, living wage will be $20. It’s not a matter of waiting patiently to be able to feed your family, it’s a matter of economic justice. People need relief NOW. So, how about we redirect a small percentage of our bloated “defense” budget to subsidize small businesses and nonprofits for a couple of years instead of making the poor wait?
So, I’m sorry, Mayor, but we need better on wages.
We also need immediate action on health care. A single-payer system was advocated by Theodore Roosevelt more than a century ago. I think that’s long enough to wait.
My patience left me with the unnecessary death of my son in 2008, and it has not returned as the death toll continues to mount — a half million Americans dead since my son’s heart stopped beating.
I was privileged to talk to him about health care for a minute. I told him about my son as Mike’s picture appeared on the screen. I told him a half million people have died since I had to do something no parent should have to do — bury my child.
I wanted to ask him, “Isn’t that enough? If not, when will it be enough? After we lose another half million? “
Instead, I stuck to the script and gave him the facts on what’s happening here in North Carolina, whose legislators have steadfastly refused to expand access to health care to a half million of the poorest people in our state. Three of them die every day. I asked him what he plans to do to assure every human being on American soil has access to health care.
His answer was a public option that would allow the wealthiest among us to keep insurance companies in business and in control.
He did say that if someone shows up sick and isn’t insured, that person will be enrolled, retroactively, in the public plan.
“Everyone will have insurance,” he said.
My problem is that as long as these greedy, immoral thugs are allowed access to our health care system, they will continue to work to pervert it to serve their needs, not those of the people. We can’t allow them so much as a foot in the door.
Health insurance companies need to be banned. For-profit providers need to be banned. Health care should never, ever, ever be for-profit because profit-mongers will always find a way to deny people what they need to make a few more dollars of blood money.
At the end of the event, Mayor Pete came over to shake my hand and say how sorry he was about my son.
“You’ve already been graced with four more years of life than he got,” I said. “So, if you would like, if you think being reminded of how bad things are in our health care system will help you move us forward, you can take my photo of him with you. Look at it. His name was Michael and he was dearly loved.”
Mayor Pete reached out and took the photo, thanked me and then stood for a moment looking at it.
I believe he’s sincere, and he wants to, as he put it, “be useful.”
I want him to be more bold. I want him to stand up to the immorality of the 1 percent and say we need to address these issues now, and not some unspecified time down the road.
I am glad I met him. I found him intelligent and sincere in his desire to address these problems; I just want him to be more eager to get it done now.
When I put a photo of Mayor Pete on my Facebook feed yesterday, it blew up with people being disrespectful. That really bothered me. To me, when someone reaches out and wants to talk, I want to listen, even if we disagree.
There are people who don’t deserve my respect and one of them is squatting in the Oval Office right now; another leads the Senate, and still more of them are in our courts and legislatures. They spew hate and seem to enjoy the cruelty of racism, poverty, the war economy and ecological devastation for profit. These people don’t deserve respect.
On the other hand, someone who is well intentioned, but with whom I disagree, I will treat with respect.
Perhaps being a reporter and having to treat people with whom I disagree vehemently with respect taught me to listen better, to understand that the only person who agrees with me on everything is me.
I still will not vote for someone who won’t support Medicare for all in the primary, and I’m not sure what I’ll do in he general election.
But I liked Mayor Pete personally. I believe his desire to turn things around is sincere. I also think he might come a little closer to my views with time and maturity.
I had one prayer going into yesterday’s event: that we might move him toward a vision of a better nation, a more just nation, and that he might drop his incremental approach to racial, social and economic justice.
I’ve taken a lot of criticism lately for saying I won’t vote for anyone who doesn’t support a single-payer health care system.
Here’s the thing: You don’t get to decide who gets my vote, not in the primary and not in the general election.
I have good reason for my position. I call it the Dead Kid Card (only because that’s what my son called it before he died from lack of access to health care). I suffered a loss most parents only have nightmares about. I sat beside my precious child as he breathed his last, and his cause of death was neglect for profit.
My son should not have died, nor should any of the half million people who have been murdered by our profit-driven “system” since his heart stopped beating.
Universal access to care was proposed by Theodore Roosevelt more than a century ago, and we’re still waiting. The rest of the world has found ways to do it, but we still prostrate ourselves before the altar of profit. We spend twice as much per person as any other system in any advanced nation, and our outcomes are always the worst among the industrialized nations. Hell, Cuba has better outcomes than we do, and that’s because everyone has access to the care they need.
I’m not willing to wait any longer. I believe enough people have died, and it’s time to stop the unnecessary deaths so some insurance executive can take home another few million dollars and stash it in an overseas tax-sheltered account.
Health insurance companies are parasites. They add nothing of value to our system, but they suck billions of dollars out of our economy, and they deny lifesaving care that causes the deaths of tens of thousands of people every year.
OK, so now you’ll argue that some people love their plans. Well, I have a couple of problems with that. First of all, Medicare for all will get care to everyone, not just the few well-to-do people who have their access to care but don’t even think about people who have little or no access. That’s called selfishness, or greed. Remember, Jesus never said, “I got mine, get your own.”
Secondly, we know that 70 percent of employer-sponsored plans are high-deductible — meaning you have to spend $1,000 or more before you see a penny in coverage — The average deductible is $3,000. This is in a society where nearly half of the people say they can’t pay a surprise bill of $400 without borrowing money.
No one can make me believe that most Americans love their health insurance in light of those statistics.
And it’s getting worse.
According to a study by The Commonwealth Fund, (https://www.commonwealthfund.org/ ), median household income in the United States between 2008 and 2018 grew 1.9% per year on average, rising from $53,000 to $64,202. But health care costs rose 6 percent per year in the same time, and the Affordable Care Act has been in effect for about half of that time.
“The most cost-burdened families live in southern states,” said Sara Collins, lead author of the report and vice president for health care coverage, access and tracking at The Commonwealth Fund.
In general, those states tend to have lower median incomes, so even if the sticker price for premiums and deductibles is lower than in higher-income regions, health insurance costs take up a greater share of Southerners’ income.
The next argument I get is that people who work for insurance companies need their jobs. Well, jobs administering Medicare will be plentiful. Even managers will be needed, although the CEOs who have been skimming billions in our national treasure can go and live on their blood money because they won’t be stealing any more from us.
The longer we wait to do this, the worse things are getting, as for-profit companies take over health care systems, especially in rural areas.
Rural hospitals are cutting services or closing altogether, especially in states that refuse to take the federal Medicaid expansion money that their citizens are already paying for. Here in Western North Carolina, women in labor have to travel up to two hours to get to a labor and delivery facility. Ambulance rides can cost up to a whopping $40,000. People are dying because they have to call an Uber because they can’t pay for an ambulance.
Under the current administration, the Affordable Care Act’s protections have been weakened. Premiums and deductibles have skyrocketed. Since the mandate that everyone buy insurance has been lifted, people of moderate means have dropped their coverage so they can afford to pay for food and shelter.
Meanwhile, plans have become more and more restrictive, putting drugs and care on tiers so that if a doctor comes to see you while you’re in the hospital and they are not on Tier 1 in your plan, you could be faced with thousands of dollars in uncovered care. That lifesaving antibiotic could wind up costing you $300 per pill.
So, when I hear a candidate say we can wait for Medicare for all, my response is, “Nope.”
Our corporate overlords may not care if you die from lack of access to care, but I do.
I will not vote for someone who thinks people can wait for health care, and you have no right to tell me I have to. People are dying NOW, and we have to fix this NOW. I really don’t care if the rich don’t like it. They’re not the ones I’m worried about.
My vote will ONLY go to someone who’s ready to fix this.
Last night, somebody shocked me by telling me I was talking “nonsense” when I insisted out current health care “system” is broken, and that we have to move to single-payer.
“We need to preserve our system,” she said, and proceeded to try and shame me into supporting Joe Biden or another “moderate” who’s beholden to the profit-mongers currently in charge.
I was appalled that anyone knowing how I lost my son to this mess would say that to me.
I told her she was talking privilege.
She has the privilege of being covered by an insurance plan she can afford, co-pays, deductibles and all.
She has the privilege of not needing immediate help that’s just unavailable because she can’t afford it.
She has the privilege of not having watched someone she loves more than life itself draw his last breath because nobody would help him.
She has the privilege of being able to wait for politicians get off their asses and do something about the 35 million Americans who have no insurance, and the millions more who have insurance with a deductible so high they can’t afford to use it.
She claimed she has no such thing as privilege, that she just wants people to be able to get health care.
But she can’t see that tens of millions of Americans are going without while she calls me stupid for wanting them to get immediate access.
She probably thinks we can wait a few years for the minimum wage to hit $15, too. But if you’re making $7.25 an hour, you can’t wait for that raise. You need that money now. If you think otherwise, your privilege is showing.
If you hold the people at our borders in contempt because they walked a thousand miles with their children to escape drug gangs — gangs that are the direct result of US drug policy — your privilege is showing.
If you think our policy of incarcerating people — non-citizens or citizens — in private, for-profit prisons, not feeding them enough (I know about conditions in private prisons because my brother is in one) and then “contracting” their labor out to the highest bidder, your privilege is showing.
If you think the people in Flint and other cities with lethal contaminants in their water can wait for it to be fixed, your privilege is showing.
If you think it’s OK to keep somebody in jail for months as they await trial for a nonviolent misdemeanor like falling asleep on a park bench, causing them to lose their jobs, housing and even their kids, just because they can’t come up with $250 cash bond, your privilege is showing.
If these things and other atrocities perpetrated by the fascists in Washington are OK, it’s because you have a warm bed, clean water, access to health care, reliable transportation, enough food — in other words, privilege.
If you think poor people are just lazy and only want a handout, your privilege is showing big time.
And if you’re white and male and you don’t see any problem with the way things are, you’re particularly privileged.
When you have such privilege and you deny it, I find that deeply offensive. When you call me stupid because you can’t see your privilege — even when it’s pointed out to you, you are even more despicable to me.
When you have such great privilege and you deny it, you are willfully ignorant, and there are few greater sins in my book.
I know it’s hard to recognize our own privilege, but we must if we are to move toward a just society for everyone, not just for you.
A “friend” came onto my Facebook page yesterday to explain to me why we need to fix health care gradually.
The first thing I did was ask whether she thinks a century is gradual enough, since it was Theodore Roosevelt who first proposed a single-payer health care system more than 100 years ago.
But then I thought about it and removed the post — and the friend.
This is a person who knows I lost my son to this broken system. Her post was immensely disrespectful, and before I removed the post, I asked whether it would take the death of a child of hers to make her understand how misguided her post on my timeline was.
And in the 11 1/2 years since my son died, another half million Americans have died the same way. That’s right, 500,000 — 45,000 a year, year in and year out. The Affordable Care Act helped for awhile, but now 70 percent of employer-sponsored plans have a deductible of $1,000 or more — some as high as $6,000 — not to mention co-pays and out-of-network charges. Even plans on the exchange are pricey unless you have a large subsidy. The year before I went on Medicare, my premiums were $1,300 for just me and the deductible was $3,000. My co-pay to see my regular doctor was $40, and a visit to a specialist was $75. When I needed outpatient surgery for a kidney stone, I was responsible for more than $6,000 of the $13,000 bill. And this was before our local hospital was sold to a for-profit corporation.
No one has studied how many insured Americans die because they can’t afford that kind of money. Remember that a recent survey showed the majority of Americans can’t afford an unexpected $800 expense. Since most deductibles now are more than $1,000, where does that put the average family?
I’ll tell you one thing, it puts them in a place where they can’t afford health care. Sure, they’re able to get the colonoscopy or the mammogram, but if it shows any irregularity, now what? Can you afford the tests? How about the treatment?
Nearly half of cancer patients have to wipe out their entire life savings for treatment — and that’s with insurance. One in three will go bankrupt.
Once every 12 minutes another American dies from lack of access to health care. I’m betting their families would rather not have waited for reform.
If you think you need to tell me why we should wait to fix health care, do me a favor and restrain yourself. I’ve heard all your arguments and I don’t need to hear them again. It only re-opens the wound of my son’s unnecessary death again and again and again.
I understand that you don’t know what it’s like to watch your child breathe his last, and I hope you never do. But you need to understand that hearing you say we can wait for health care means you don’t give a damn about any of these deaths, even though you say “I’m sorry for your loss.”
If you come onto my timeline to tell me why we can wait, you are most assuredly not sorry for my loss, or for anyone else’s.
I think enough people have died, and you’ll never convince me it’s OK to let more people die.
I think your excuses are lame, and a lot of them are lies designed to keep the oligarchs in charge of our health care.
I think you’ve probably not lost a child to this mess, and I sincerely hope you never do.
And I still think we need to fix this now. There are no more excuses.
We’ve seen a number of writings by Republicans lately urging Democrats to run another “moderate.”
Here’s why we need to ignore them:
Moderate Republicans want to make the Democratic party their own because they can’t bring themselves vote for a fascist. That’s a good thing, but not for Democrats.
If we put up another moderate, we’ll get the same result: another loss. That’s because most Americans know we need real change and we need it now, not in another four or eight years. Young adults won’t vote for another moderate, and a lot of traditional Democrats won’t, either, so please stop telling me I’m dooming us because I refuse to pledge to “vote blue, no matter who.” That little bumper-sticker slogan was probably coined by a “moderate.”
Eighty-three percent of Americans want Medicare for all. Eighty-three percent. But none of the moderates will pursue that.
Our planet is suffering irreversible damage because of climate change. If we don’t so something drastic in the next decade, we face extinction because we can’t breathe methane, and methane levels are increasing at an alarming rate. A moderate won’t do anything radical because he or she is owned, or at least partly owned by fossil fuel interests.
Minimum wage NEEDS to be $15 or more an hour. A moderate won’t do that because his or her corporate overlords will forbid it.
We have a humanitarian crisis at our border, which is nothing more than a ramping up of existing policies put in place by a moderate. Yes, Obama was a moderate, and he deported more people than anyone before him. Obama created the camps, although they were nothing like what they have become. Still, I doubt a moderate will close them. Remember how Obama promised to close Gitmo? It’s still there.
As a result of this policy, human beings now are being rounded up and placed in conditions that we wouldn’t allow for animals. How long before we start killing some to make room for more?
We have a criminal thug in the Oval Office and the moderates in Congress do nothing to stop him.
The people offering this advice are REPUBLICANS looking out for their own interest, not ours. Where are your critical thinking skills, people? These are not “hard left” positions. These are mainstream positions, and we will not win back the Senate or the White House by embracing them.
We can’t endure another four years of fascist rule. The Republicans in the Senate have pushed through hundreds of right-wing judges, and another loss could corrupt our courts beyond repair.
Our deficit is rising precipitously and we can’t endure that for another four years.
Our air and water are dirtier than they’ve been in many decades.
Worst of all, we have lost our leadership position and any moral authority in the world.
A moderate won’t fix any of this. The attempt to get Democrats to run another moderate is nothing more than the 1 percent looking out for its own interests.
They’re scared because of the popularity of the true Democrats. Look at the party platform from 1976 and you’ll see the traditional values of the Democratic Party. You’ll also see they’re the same values being embraced by what Republicans are calling the “left wing” of the party, and by the majority of the American people.
Don’t fall for the lies of the Republicans and the oligarchy. Insist on a real Democrat to oppose the current administration and you’ll ensure a victory in 2020.
With my vacation half over (I spent a week on Cape Cod camping with my sisters and leave tomorrow to spend a few days with friends before my granddaughter and her husband and daughter come to visit next week), I feel rested and restless at the same time.
I had an argument with my sister over whether we should shoot for an immediate move to Medicare for all, or whether it should be done gradually.
“I’m done with gradualism, ” I told her.
During the 12 minutes we’d been talking about this, another person died the way Mike did. I’ve heard every argument, and in the time it will take you to recite them to me, another person will have died the way Mike did. When you add them all up, it’s about a half million human beings, just in the 11 years since Mike died.
And now you want me to wait some more. Are we waiting until my other son dies? Maybe one of his kids or grandkids? How long are we supposed to wait?
I didn’t get all this out before she yelled at me to let her finish her argument. In that time, another person died. and since that time, another 100-plus people have died. I turned my head and started reading something on my phone because I didn’t want an ugly scene, but I knew I couldn’t convince her I’m right. She pays through the nose, but she has access to care. She had surgery in the last year for a condition that would have killed her had she been uninsured.
I can’t even begin to say how grateful I am for that.
I tried to tell her all this, but I just started crying instead because even after 11 years, the pain of my son’s death is as fresh and raw as ever, and in the time I took to try and explain that, another American died from lack of access to health care and his or her family is plunged into the same endless grief I experience every day.
Meanwhile, children languish in filthy cages with no sanitary supplies and no beds, separated from their parents in a strange land where they don;t know what people are even saying to them.
Meanwhile, the Earth continues to burn, hurtling us toward extinction in a few short generations.
Meanwhile, we contemplate war on Iran.
Meanwhile, the water in Flint and dozens of other American cities is still poisoned.
Meanwhile, the election districts are still gerrymandered and the elections are controlled by two utterly corrupt parties.
Meanwhile, the wealthiest of us continue to steal and hoard our wealth while half of our families live near or below the poverty level because those with the most money won’t pay a living wage for a week’s work and then they get to call poor people lazy because they don’t have enough money to meet their basic needs.
Meanwhile, we all go about our business, taking care of ourselves but not noticing how much trouble we’re in as a nation, as a species.
Meanwhile, a third of our nation continues to defend the hatred and ignorance spewing from the Oval Office, and we have yet to rise up in sufficient numbers to prod our so-called leaders into action to remove this criminal from office.
All the while, complacent people scream at me to “VOTE BLUE, NO MATTER WHO!!!!!!!!!!!!!!!!!!!!!!!”
No. No to all of it.
I will not shut up. I will not wait. I will not be patient. And I will not vote for another Wall Street-sponsored candidate.
I’m done with all of it. This is more than a national emergency, it’s a planetary one. It’s about our continued existence as a species, and you’re asking me to wait patiently?
Every day we wait, dozens more people die.
Every day we wait, children in Flint and other cities face irreversible brain damage from lead in their water.
Every day we wait, people languish in jail, losing their jobs and homes and children because they don’t have $500 bail money. So they wait in jail for months to be tried for a crime they may not even have committed.
Every day we wait, we edge closer to extinction.
Wake up. Stop waiting for somebody else to save us. We have to save ourselves, and we can’t do that by being patient.