Presenting our ideas

Some of our ideas for combatting poverty in our community. We posted them on the wall yesterday and refined them today.

I don’t like “visioning.” My experiences with it up to now have been disappointing at best. I much prefer brainstorming, and it needs to be with people who are open to ideas.

The process I went through in the last two days with Children First/Communities in Schools was very much a brainstorming session with a ton of positive energy and people from a variety of backgrounds.

I’ve been involved too many times with groups of people who want to help “those poor people,” whose intentions are good but who have no experience living in poverty. I encountered a lot of them when my kids were little and I was poor. I had to subscribe to their ideas or I was a problem mom.

It’s easy to tell someone her son needs therapy, but it loses something when you tell a low-wage working mother she has to take two hours off every Wednesday afternoon — without pay — to get him there. It’s easy for people who’ve never been poor to think they know what it’s like, but it’s better to listen to people who are poor describe their everyday struggles and work toward solutions with them, respecting them as equals.

The solutions we come up with have to work for the people we’re trying to help. Most poor people do have jobs, and those jobs don’t pay them while they’re in a parenting workshop or at a clinic. We need real solutions and we need them to be where and when people can use them.

You can’t say you’re giving children a safe place for recreation when the park and their neighborhood are separated by a four-lane highway.

That’s why I was glad to hear so many of the solutions today involve going into the neighborhoods with services at community centers that are run by people in the community. There was a suggestion of child-care cooperatives that would offer training in early childhood brain development and appropriate activities to the people who will care for children.

A lot of small nonprofits are duplicating services instead of collaborating, and one group today decided to build a coalition of service providers — nonprofits and the Department of Social Services — that communicates so all our services reach the right people, and we can build partnerships to offer stronger solutions.

We had lots of ideas for mentoring — one-on-one services that I believe in. One of my favorite ideas was for every new parent to get a visit from a nurse, doula or grandmother-type who could answer questions and guide the new parents to any services they might need. This is especially important for first-time parents, who might have little or no experience caring for infants. Nothing helps like a little self-confidence, especially when it’s paired with a telephone number they can call if the baby won’t stop crying and they need a break.

Women who became mothers as teenagers make good mentors for teen moms. They make even better mentors for teenagers who are at risk of getting pregnant before they finish school. You’re more likely to trust somebody who’s been where you’re thinking of going than a middle-aged white woman with a degree in social work or psychology. That person can be the one behind the young woman with the real-life experience. I call it a positive chain reaction.

We also talked about getting funding from city and county governments for small programs and working with state lawmakers to change outdated or unreasonable rules and regulations. We aim to engage people in the community in these efforts.

Too many government programs have taken away the ability of people to advocate for themselves; we want to give that back to people who receive services.

No one of the ideas we came up with during the last two days will eliminate child poverty in Buncombe County, but it is a step in the right direction. I believe we can reduce poverty by helping people improve their communities and giving the skills and the self-confidence to become civic leaders and bring about real change.

Let me introduce myself

Publisher’s note:

AWOP is pleased to introduce our newest contributor, Leslie Boyd. A fierce advocate of health care for all and I am super excited to have her join us!

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I’m Leslie Boyd. As a newspaper reporter for more than a quarter century, I saw and told the stories of real people in real situations who were being held down by systems that worked against them.

In 1983, it was Jeannie Alkema, a woman in Passaic County, NJ, with debilitating multiple sclerosis who was being cared for in her home. Her 12-year-old son suffered nightmares of his mother being put in a nursing home and him being placed in foster care. It was less expensive to care for Jeannie in her home than in a nursing home, but one day she called me in a panic and said the Department of Social Services was going to cut off her home care. Her son’s nightmare was about to become reality.

I called the DSS director and told him I was working on a front-page story about the mess( which I was, if she was going to be sent to a nursing home)  and he knew nothing about it. A few minutes later, though, he called me back and said it had been a computer glitch and Jeannie and her son would continue to get services at home.

My father, also a newspaper reporter, loved when he was able to right a wrong, to help people caught up in systems that were harming them.

I called what I did – writing about social justice issues by telling the stories of real people – advocacy journalism.

In 1992, I started writing about the health care crisis when a woman I knew told me she would be in debt for the rest of her life because she had thyroid cancer and had to pay for her treatments out-of-pocket. President Clinton had just been elected and was promising to help the then-16 million uninsured get access to quality health care.

His efforts were defeated by the health care industry, which didn’t want any controls in place.

Then, at the end of 2005, my son, Mike Danforth, got sick. He had a birth defect that left him very vulnerable to colon cancer. That being a pre-existing condition meant Mike couldn’t get insurance at any price, so he couldn’t get the colonoscopies he needed. The gastroenterologist wouldn’t even let Mike pay over time – he insisted on having the full price up front.

Mike and his wife, Janet, were students. They didn’t have $2,500 or more to pay, so Mike didn’t get his colonoscopies, and in December of 2005, he got sick. He couldn’t keep food down and he had abdominal pain. Still, he couldn’t get a colonoscopy. His doctor wrote in Mike’s medical record that Mike needed a colonoscopy but couldn’t afford it and then suggested Mike should get financial counseling.

Mike went to the emergency room several times and was given laxatives, pain killers and antibiotics, but he continued to get worse.

The doctor finally agreed to do a colonoscopy, but he never told Mike the results: “couldn’t finish procedure; next time use (pediatrics) scope.”

Mike’s colon was blocked. His life was in danger and his doctor just sent him home.

The next time Mike saw the doctor, a couple weeks later, he was vomiting fecal matter and his organs were shutting down. Mike, who was 6 feet tall, weighed just 112 pounds. He was admitted to Memorial Health Center Hospital in Savannah.

It took doctors five days to stabilize Mike so he could have surgery. By then his cancer was stage 3; it had spread to 11 of 13 lymph nodes.

Mike got chemo and radiation through a charity in Savannah, where he lived and was neglected, but the radiation caused a new blockage. This time his doctors let him get down to 104 pounds before they did anything, and the only reason they did was because we were going to take it the media.

The pathology report found “a few viable cells,” and they just gave up. No one from oncology ever even came to talk to him, and his doctor failed to treat a life-threatening infection in his surgical incision.

Fortunately for Mike, his life was extended when I got him a consultation with Dr. Herbert Hurwitz at Duke University Medical Center. He took one look at Mike, and knowing Mike would be dead in a few weeks if he was sent back to Savannah, Dr. Hurwitz “adopted” him.

Mike still needed Medicaid for his chemo, though, and he and Janet had to split so he could get it. He applied for disability but was turned down twice. He was finally approved in March 2008, but he died at age 33 on April 1, 2008, nine days before his first check came.

We used the bulk payment to pay off the debt we incurred supporting Mike for three years while he waited for disability.

In July 2009, I left the newspaper to do real advocacy. I founded Life o’ Mike as a 501(c)(3) nonprofit so I can stand up for what’s right and try to help people get the care they need. I tell Mike’s story and the stories of others who are suffering because Americans don’t think health care should be a basic human right.

Americans desperately need to be told the truth, but Big Insurance – and Big Media – prefer to keep people in the dark; that’s where they operate best – in the dark.

It’s up to progressives – liberals – to stand up and tell the truth and to work for social justice – living wages, safe, affordable homes, health care, education, consumer safety, food safety and more.

We have our work cut out for us.